I absolutely love this piece written by Emily Perl Kingsley. I hope you enjoy it too.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Severaly hours later, the plane land. The stewardess comes in a says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy! All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for awhile and you catch your breath, you look around...and you begin to notice that Holland has windmills...and Holland has tulips. Holland even has Rembrants.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was suppposed to go. That's what I had planned."
And the pain for that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss.
But...if you spend your life mourning the fact that your didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.
Monday, July 28, 2008
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4 comments:
Thank you so much for sharing your story. I was so touched-and teary-eyed- reading your testimony. John, you write very well! It is great that we get to know William and autism better. Hopefully, thanks to you, we can become better friends and advocates for all the families who have to deal with it.
I do believe that God chose you guys to be William's parents. He is so blessed to have you.
I am amazed by your patience and commitment.
Thank you.
Love, Gaelle
I really liked this post, Nickie.
BTW, I'm linking your blog up on mine, if you guys are down with that (no need to reciprocate at all).
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